Assistant Professor in Psychology Sophie Hodgetts explains the findings from her groundbreaking research on PMDD.
An estimated 2% of people who menstruate are thought to have premenstrual dysphoric disorder (PMDD). The condition causes severe emotional, mental and physical symptoms in the week or two before a person’s menstrual cycle – including brain fog, stomach cramps, bloating, mood swings, anger, sadness, low self-worth, anxiety and even thoughts of suicide.
Although PMDD symptoms usually stop when the period starts, the condition can still make everyday life difficult. Research shows that PMDD is associated with people having a poor quality of life, missing work or school and withdrawing from social activities. The repercussions that PMDD has on a person’s life often persist beyond the symptomatic phase of the person’s cycle.
Yet despite the prevalence of PMDD, little is known about how it affects life at home, as no studies have been done.
My recent research is the first to shed light on how PMDD impacts life and relationships – from the perspective of both those with PMDD and their partners. Our findings showed that both PMDD sufferers and their partners experienced similarly poor life and relationship quality.
My coauthor and I ran two studies that both used online surveys.
In the first study, we asked people with PMDD to complete two questionnaires. The first was designed to tell us about their quality of life. They answered questions about four different areas of their life: their physical health, psychological health, social relationships and living conditions.
The second questionnaire was designed to tell us about their relationship with their spouse by asking questions about different components of their relationship (including love, trust, intimacy, commitment and passion), as well as their overall satisfaction with the relationship. We compared their responses to a control group of people of menstruation age who did not have PMDD.
Our results showed significantly lower quality of life in people with PMDD compared to people in the control group. This difference was evident in all four of the areas of life that we studied. We also found that participants with PMDD consistently reported lower quality of life when it came to their psychological health, social relationships and living conditions – regardless of their menstrual cycle phase.
Relationship quality, too, was significantly lower for those with PMDD compared to the control group when it came to trust, intimacy and passion. However, when it came to love and commitment, people with PMDD and those without the condition reported similar levels of satisfaction.
In the second study, we compared the responses of people who are in a relationship with someone who has PMDD, with those who are in a relationship with someone who menstruates but does not have PMDD.
We used the same questionnaire as the previous study to investigate relationship quality. To study quality of life, we used a standard questionnaire that was designed for people who provide care or support for an adult. This asked questions about different areas of life that are relevant for familial carers, such as their support for caring, caring choices, any stress they experience, money matters, personal growth, sense of value, ability to care and satisfaction.
We found that PMDD partners also had lower life quality compared to the control group. This difference was evident in every area of life except money matters (where both groups had similarly low scores). When it came to relationship quality, results from the PMDD partners echoed those from the PMDD patients – both reported lower relationship satisfaction in all areas except for love and commitment.
Our study shows that PMDD is associated with poor life and relationship quality for both those with the condition and their partners. This highlights the need for support that goes beyond prescription drugs and managing symptoms. This support also needs to be available to the loved ones and partners of people with PMDD who provide care and support.
These findings suggest that future research should aim to develop PMDD-specific interventions that support both the person with PMDD and their partner. My future research plans are to delve deeper into the aspects of relationships affected by PMDD. For instance, I am planning a follow-up study involving interviews and focus groups with PMDD sufferers and their loved ones, to better identify areas for intervention and inform the development of supportive strategies.
There are many reasons why this kind of support is important. For instance, we know from research into other mood disorders (such as depression and anxiety) just how crucial good interpersonal relationships are for successfully managing these conditions in the long term.
We also know that the partners and spouses of people with a mental illness often find themselves acting as a familial caregiver for their partner. Studies of other mood disorders have shown that familial caregivers are at a higher risk of developing mental illnesses themselves, when compared to the general population. Supporting familial caregivers is known to improve life for all involved.
My research shows that PMDD isn’t just a problem for patients. It impacts daily life and relationship quality for both people in a relationship. This study provides a first step. Now that we have a better understanding of the wider effect that PMDD has, we can start to investigate how to support both people.
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